Pilot site section
This is the area that people involved in the project used to share information. It provides a detailed breakdown of information about each pilot site, their project plans, the work they undertool and the stakeholders they involved in their work.
Cambridgeshire and Peterborough Mental Health Partnership NHS Trust will implement the information prescription project within its older person’s inpatient and community resource service following consultation and development in partnership with service users, carers and partner organisations. The IP will direct patients to resources offering practical advice and support information to enable people to support themselves more easily, or information on where to get support when this is not possible.
Health condition: elderly mental health — dementia and depression
Darlington PCT will introduce information prescriptions to a wide range of patients with long term conditions, specifically: diabetes; long term neurological conditions; hypertension; and depression. The IP will contain some key words that can be entered into a central IT database of healthcare, social care, local government, voluntary sector, charitable and DWP information, that the patient can access and browse.
The Doncaster PCT Information Prescription will implement its project for those with common mental health problems, mainly anxiety and depression. The information will be incorporated into the stepped care model of delivery, which offers the least restrictive option likely to produce benefit. All current information and directories currently in use in the stepped care model will be reviewed and agreed in conjunction with Doncaster Health Information Group.
The Evelina Children’s Hospital aims to pilot a pharmacist-led information prescription process for parents and carers of children with long term conditions attending the hospital. Three to four community pharmacies will be identified by partner organisations: Boots the Chemist, Tesco and the Co-operative stores will provide a range of small and large scale settings where the information prescription will be handed out to parents when collecting their child’s medicine.
The Hammersmith and Fulham PCT, Diabetes UK, Asthma UK and Arthritis Care have entered a partnership called ‘Arthritis, Asthma and Diabetes in Hammersmith and Fulham’ with the aim of issuing information prescriptions for patients with these conditions in areas of health inequality. The content of the information prescriptions will be focused on signposting people with asthma, diabetes, and/or arthritis to relevant national and local organisations to websites that provide the answers to questions related to a particular moment in care (e.g. diagnosis, emergency care, annual reviews, medication concordance).
Health condition: Long term condition — diabetes, asthma, arthritis
The aim of the Heart of England pilot is to develop an electronic information prescription pad, in the form of a number of clearly defined template screens, which will reflect the information needs at specific points identified in care pathways for patients with cystic fibrosis transferring from childhood to adult care.
In the Isle of Wight pilot the aim is to produce a health and social care directory of services for older people with mental health problems e.g. dementia and depression. The directory will describe the services provided by the statutory, private and voluntary and community sectors.
Health condition: elderly mental health — dementia and depression
- Link to the project proposal
- Link to delivery plan document
- Link to additional baseline information: consists of: Delivery Plan – DH Briefing Note; ABC Course Evaluation: 2007; Well-being survey report; Initial assessment Procedure; Information leaflets available for adults
- Link to Isle of Wight Council website
The aim of Leeds Mental Health Trust is to give people with dementia and their families high quality information so that they can take control of their lives, understand what is happening to them and prepare for the future. The initial focus of the project will be on people with dementia and their carers in secondary care but it is anticipated that its scope would be expanded to include other diagnostic categories such as depression in older people.
Run by the Macmillan Cancer Information and Support Centre, the Durham pilot will seek to explore whether the introduction of information prescriptions, within a socially deprived area, will improve the take up of vital information and support for cancer patients and their carers. Based within the primary care setting, work would focus on supporting primary healthcare professionals to generate and issue information prescriptions. The process will be informed by training, developing supportive resources and utilising identified information directories.
The aim of the Manchester Adult Services information prescription pilot is to ensure that anyone with a long-term condition or social care need and their careers, can access systematic information about their well-being, health and care. They are taking a staged approach and are initially focusing on Parkinson’s. The content of information prescriptions will be developed through working with stakeholder groups in health, social care, the voluntary sector and including links with library services to provide a comprehensive set of information sources. Information will include: self management, healthy diets and social care services.
The Mid Trent Cancer Network pilot covers primary and secondary care and has excellent links with voluntary organisations and charities and well developed patient & public involvement arrangements. There are wide variations within the area covered by the Network, with a mixture of urban, suburban and rural environments. There are areas of affluence beside areas of deprivation that are among some of the worst in the country. The information prescriptions will be dispensed to patients on the lung, gynaecological and head and neck cancer pathways as well as palliative care.
Northumbria Healthcare NHS Foundation Trust has entered a partnership with the Parkinson’s Disease Society of the United Kingdom to provide Information Prescriptions to patients experiencing Parkinson’s. The prescriptions will provide relevant information about symptoms and treatment options at all stages throughout the progression of the Parkinson’s, from diagnosis to advanced stages, including end of life care. The IP will include signposting to relevant bodies to support self-management, to local benefits services and support and to local and national sources of information and support.
Health condition: Long term condition -- Parkinson's Disease
Oxfordshire Social and Community Services, in partnership with DeafDirect Oxford will be providing information prescriptions to individuals experiencing varying degrees of hearing impairment. They will seek to reach the full range of service users and provide information across the care pathway. The IP will be available in a variety of formats and will be tailored to the individual’s long term condition. It will pull together nationally available information, as well as local community information, such as voluntary groups. The prescriptions will offer opportunities to integrate information from other areas where clients have additional long term conditions such as neurological conditions or visual impairment.
Oxleas will introduce information prescriptions based on an assessment care pathway which includes a wide-range of local services for people who uses Bromley Complex Needs Service. The focus of the project will be with service users aged 16-66 years with long term, complex conditions. The client group is particularly hard to engage, so the project will develop systems to make the most of technology and provide them with information in a variety of formats.
Queen Elizabeth Hospital Birmingham has been using an information prescribing system for the last four years, which was developed as part a study funded by the DH. The pilot plans to roll out the system across the whole of non-surgical oncology by means of training sessions, seminars and mentoring. The system will thus cover chemotherapy, radiotherapy and palliative care as well as surgical urology clinics in the Cancer Centre.
Royal Marsden is a specialist cancer centre and the pilot will initially focus on men with prostate cancer. Feedback from this pilot will inform the process for a second clinical unit, such as the Gynaecology Unit. The IPs will signpost people to information about their disease and treatment options, supportive care and where to get further information and support, both nationally and locally.
South Essex Partnership Foundation Trust will seek to use information prescriptions to support the information needs of service users and carers using the care programme approach within the adult mental health outreach centre. The pilot will seek to issue prescriptions to those experiencing: schizophrenia, manic depression, depression, obsessive-compulsive disorder, Asbergers, Huntingdon's Disease, drug/alcohol abuse, eating disorders and anxiety.
South Staffordshire Healthcare NHS Foundation Trust will incorporate the Information Prescription project into the Young People’s Centre project, renamed ‘That Place’. The area of East Staffordshire where ‘That Place’ is housed has both deprivation and black and ethnic minority requirements. Young people with needs of emotional well-being are acknowledged as a ‘hard to reach’ group due to stigma, social and cultural issues. Access to the services provided by ‘That Place’ can be through self or family referral, health professional, or other agencies such as social care, education and MIND.
The target group for the Suffolk and Ipswich pilot is older people with long-term conditions, including people with physical needs, and mental health needs, and their carers. This pilot will explore a distributed model of delivery, but will have access points for the information in public libraries, voluntary-sector run information points and on the internet.
The Yorkshire and Humber pilot aims to develop, test and implement information prescriptions for individuals with low vision, and their carers and supporters. The information prescription will be dispensed at various points such as the point of diagnosis, as well as in high street opticians and GP surgeries, and by other health organisations who are contacted by people with sight problems (e.g. Diabetes UK).

www.informationprescription.info